Zaposlitvene možnosti otrok s kronično ledvično boleznijo
DOI:
https://doi.org/10.6016/ZdravVestn.2925Ključne besede:
kronična ledvična bolezen, otroci, začetek v otroštvu, zaposlitev, socialno-ekonomski statusPovzetek
Na zaposlenost bolnikov s kronično ledvično boleznijo (KLB), ki so zboleli v otroštvu, vpliva celoten potek razvoja bolezni med odraščanjem in tudi kasneje v odraslosti. Pogoste odsotnosti od pouka, slabše nevrokognitivno delovanje in težave s telesnim zdravjem prispevajo k slabšemu učnemu uspehu, nižji stopnji dosežene izobrazbe in čustvenim težavam, kot so slabša samopodoba, občutek osamljenosti, anksioznost in depresivnost. Mladi odrasli s KLB so manj samostojni in dosežejo manj razvojnih mejnikov ter kasneje kot zdravi vrstniki. Zaradi nižje dosežene izobrazbe in predvideno pogostih bolniških odsotnosti so manj privlačni za delodajalce. Na kakovost življenja in zaposljivost bolnikov s KLB pomembno vplivata tudi starost, pri kateri nastopi končna ledvična odpoved, in način nadomestnega zdravljenja. Kljub vsem težavam se večina bolnikov čuti sposobne za delo in si želi zaposlitve. Smiselno je ozaveščati učitelje in delodajalce o omejitvah KLB ter pomagati bolnikom pri iskanju zaposlitve.
Prenosi
Literatura
1. Novljan G, Buturović Ponikvar J. Končna ledvična odpoved pri otrocih in dializno zdravljenje. In: Ponikvar R. Dializno zdravljenje. Ljubljana: Klinični Center Ljubljana, SPS Interna klinika, Klinični oddelek za nefrologijo; 2004.
2. Meglič A, Novljan G. Bolezni sečil. In: Kržišnik C. Pediatrija. Ljubljana: DZS; 2014. pp. 445-76.
3. Splinter A, Tjaden LA, Haverman L, Adams B, Collard L, Cransberg K, et al. Children on dialysis as well as renal transplanted children report severely impaired health-related quality of life. Qual Life Res. 2018;27(6):1445-54.
DOI: 10.1007/s11136-018-1789-4
PMID: 29374855
4. Tjaden LA, Maurice-Stam H, Grootenhuis MA, Jager KJ, Groothoff JW. Impact of renal replacement therapy in childhood on long-term socioprofessional outcomes: A 30-year follow-up study. J Pediatr. 2016;171:189-95.e1.
DOI: 10.1016/j.jpeds.2015.12.017
PMID: 26768838
5. Lewis H, Arber S. Impact of age at onset for children with renal failure on education and employment transitions. Health (London). 2015;19(1):67-85.
DOI: 10.1177/1363459314539773
PMID: 24986907
6. Tzvetanov I, D’Amico G, Walczak D, Jeon H, Garcia-Roca R, Oberholzer J. High Rate of Unemployment After Kidney Transplantation: Analysis of the United Network for Organ Sharing Database. Transplant Proc. 2014;46(5):1290-4.
DOI: 10.1016/j.transproceed.2014.02.006
PMID: 24836836
7. Kogon AJ, Vander Stoep A, Weiss NS, Smith J, Flynn JT, McCauley E. Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol. 2013;28(9):1855-61.
DOI: 10.1007/s00467-013-2497-5
PMID: 23700174
8. Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health. 2006;39(1):4-13.
DOI: 10.1016/j.jadohealth.2005.03.011
PMID: 16781955
9. Murray PD, Dobbels F, Lonsdale DC, Harden PN. Impact of end-stage kidney disease on academic achievement and employment in young adults: a mixed methods study. J Adolesc Health. 2014;55(4):505-12.
DOI: 10.1016/j.jadohealth.2014.03.017
PMID: 24845867
10. Warady BA. Neurodevelopment of infants with end-stage renal disease: is it improving? Pediatr Transplant. 2002;6(1):5-7.
DOI: 10.1034/j.1399-3046.2002.1e068.x
PMID: 11906634
11. Gerson AC, Butler R, Moxey-Mims M, Wentz A, Shinnar S, Lande MB, et al. Neurocognitive outcomes in children with chronic kidney disease: current findings and contemporary endeavors. Ment Retard Dev Disabil Res Rev. 2006;12(3):208-15.
DOI: 10.1002/mrdd.20116
PMID: 17061289
12. Malovrh M, Kveder R. Kronična ledvična bolezen. In: Košnik M, Mrevlje F, Štajer D, Koželj M, Černelč P. Interna medicina. Ljubljana: Založba Littera Picta; Slovensko medicinsko društvo; 2011:1110-22.
13. Tjaden LA, Grootenhuis MA, Noordzij M, Groothoff JW. Health-related quality of life in patients with pediatric onset of end-stage renal disease: state of the art and recommendations for clinical practice. Pediatr Nephrol. 2016;31(10):1579-91.
DOI: 10.1007/s00467-015-3186-3
PMID: 26310616
14. Kimmel PL, Thamer M, Richard CM, Ray NF. Psychiatric illness in patients with end-stage renal disease. Am J Med. 1998;105(3):214-21.
DOI: 10.1016/S0002-9343(98)00245-9
PMID: 9753024
15. Lopes AA, Bragg J, Young E, Goodkin D, Mapes D, Combe C. Depression as a predictor of mortality and hospitalizationamong hemodialysis patients in the United States and Europe. Kidney Int. 2002;62(1):199-207.
DOI: 10.1046/j.1523-1755.2002.00411.x
PMID: 12081579
16. Unruh ML, Weisbord SD, Kimmel PL. Health-related quality of life in nephrology research and clinical practice. Semin Dial. 2005;18(2):82-90.
DOI: 10.1111/j.1525-139X.2005.18206.x
PMID: 15771650
17. Antunes H, Parada B, Tavares-da-Silva E, Carvalho J, Bastos C, Roseiro A. Pediatric Renal Transplantation: Evaluation of Long-Term Outcomes and Comparison to Adult Population. Transplant Proc. 2018;50(5):1264-71.
DOI: 10.1016/j.transproceed.2018.02.089
PMID: 29880345
18. Teixeira CG, Duarte MDCMB, Prado CM, Albuquerque EC, Andrade LB. Impact of chronic kidney disease on quality of life, lung function, and functional capacity. J Pediatr. 2014;90(6):580-6.
DOI: 10.1016/j.jped.2014.03.002
PMID: 24950475
19. Goldstein SL, Graham N, Burwinkle T, Warady B, Farrah R, Varni JW. Health-related quality of life in pediatric patients with ESRD. Pediatr Nephrol. 2006;21(6):846-50.
DOI: 10.1007/s00467-006-0081-y
PMID: 16703376
20. Burra P, De Bona M. Quality of life following organ transplantation. Transpl Int. 2007;20(5):397-409.
DOI: 10.1111/j.1432-2277.2006.00440.x
PMID: 17403143
21. Muehrer RJ, Becker BN. Life after transplantation: new transitions in quality of life and psychological distress. Semin Dial. 2005;18(2):124-31.
DOI: 10.1111/j.1525-139X.2005.18214.x
PMID: 15771656
22. Duquette PJ, Hooper SR, Wetherington CE, Icard PF, Gipson DS. Brief report: intellectual and academic functioning in pediatric chronic kidney disease. J Pediatr Psychol. 2007;32(8):1011-7.
DOI: 10.1093/jpepsy/jsm036
PMID: 17556399
23. Brouhard BH, Donaldson LA, Lawry KW, McGowan KR, Drotar D, Davis I, et al. Cognitive functioning in children on dialysis and post-transplantation. Pediatr Transplant. 2000;4(4):261-7.
DOI: 10.1034/j.1399-3046.2000.00121.x
PMID: 11079264
24. Rocha S, Fonseca I, Silva N, Martins LS, Dias L, Henriques AC. Impact of pediatric kidney transplantation on long-term professional and social outcomes. Transplant Proc. 2011;43(1):120-4.
DOI: 10.1016/j.transproceed.2010.12.011
PMID: 21335168
25. Didsbury MS, Kim S, Medway MM, Tong A, McTaggart SJ, Walker AM, et al. Socio-economic status and quality of life in children with chronic disease: A systematic review. J Paediatr Child Health. 2016;52(12):1062-9.
DOI: 10.1111/jpc.13407
PMID: 27988995
26. Williams JH. Hospital schools. Lancet. 1951;1(6667):1269-70.
DOI: 10.1016/S0140-6736(51)92771-7
PMID: 14833042
27. AAP Committee on School HealthHome, Hospital, and Other Non–School-based Instruction for Childrenand Adolescents Who Are Medically Unable to Attend School. Pediatrics. 2000;106(5):1154-5.
PMID: 11061793
28. Kaspar CD, Bholah R, Bunchman TE. A Review of Pediatric Chronic Kidney Disease. Blood Purif. 2016;41(1-3):211-7.
DOI: 10.1159/000441737
PMID: 26766175
29. McDonald KM, Sundaram V, Bravata DM, Lewis R, Lin N, Kraft SA, et al. Closing the Quality Gap: A Critical Analysis of Quality Improvement Strategies (Vol. 7: Care Coordination). Technical Reviews, No. 9.7. Rockville: Agency for Healthcare Research and Quality; 2007.
30. Perrin JM. Health services research for children with disabilities. Milbank q. 2002;80(2):303-24.
DOI: 10.1111/1468-0009.t01-1-00005
PMID: 12101874
31. Chen DF, Tsai TC, Su YT, Lin CW. Hospital-based school for children with chronic illness in Taiwan. J Formos Med Assoc. 2015;114(10):995-9.
DOI: 10.1016/j.jfma.2013.12.006
PMID: 24461878
32. Law MC, Chow KM, Fung JSF, Szeto CC, Li PKT. Employment status in peritoneal-dialysis patients. Hong Kong Journal of Nephrology. 2016;18:11-4.
DOI: 10.1016/j.hkjn.2015.10.002
33. Tjaden LA, Vogelzang J, Jager KJ, van Stralen KJ, Maurice-Stam H, Grootenhuis MA, et al. Long-term quality of life and social outcome of childhood end-stage renal disease. J Pediatr. 2014;165(2):336-342.e1.
DOI: 10.1016/j.jpeds.2014.04.013
PMID: 24837864
34. Novljan G, Rus R, Kreft I, Čalić M, Buturović Ponikvar J. Dolgoročni učinki presaditve ledvice pri otrocih in mladostnikih. In: Arnol M, Kandus A, Bren A, Buturović Ponikvar J. Presaditev ledvice. Ljubljana: Univerzitetni klinični center, Interna klinika, Klinični oddelek za nefrologijo; 2009. pp. 173-87.
35. Nakayama M, Ishida M, Ogihara M, Hanaoka K, Tamura M, Kanai H, et al. Social functioning and socioeconomic changes after introduction of regular dialysis treatment and impact of dialysis modality: a multi-centre survey of Japanese patients. Nephrology (Carlton). 2015;20(8):523-30.
DOI: 10.1111/nep.12482
PMID: 25854420
36. Gorevski E, Succop P, Sachdeva J, Scott R, Benjey J, Varughese G. Factors Influencing Posttransplantation Employment: Does Depression Have an Impact? Transplant Proc. 2011;43(10):3835-9.
DOI: 10.1016/j.transproceed.2011.08.107
PMID: 22172856
37. Urquhart-Secord R, Craig JC, Hemmelgarn B, Tam-Tham H, Manns B, Howell M. Patient and Caregiver Priorities for Outcomes in Hemodialysis: An International Nominal Group Technique Study. Am J Kidney Dis. 2016;68(3):444-54.
DOI: 10.1053/j.ajkd.2016.02.037
PMID: 26968042
38. Ministrstvo za delo, družino, socialne zadeve in enake možnostiPrehod mladih. Available from: https://www.gov.si/zbirke/projekti-in-programi/prehod-mladih/.
39. Chang CF, Winsett RP, Osama Gaber A, Hathaway DK, Gaber AO, Hathaway DK. Cost-effectiveness of post-transplantation quality of life intervention among kidney recipients. Clin Transplant. 2004;18(4):407-14.
DOI: 10.1111/j.1399-0012.2004.00181.x
PMID: 15233818
40. Simchen E, Naveh I, Zitser-Gurevich Y, Brown D, Galai N. Is participation in cardiac rehabilitation programs associated with better quality of life and return to work after coronary artery bypass operations? The Israeli CABG Study. Isr Med Assoc J. 2001;3(6):399-403.
PMID: 11433629
Prenosi
Objavljeno
Številka
Rubrika
Licenca
Avtor na prispevku, ki ga bo pripravil za Zdravniški vestnik, po pogodbi nanj prenaša vse materialne avtorske pravice, kakor izhajajo iz 22. člena Zakona o avtorski in sorodnih pravicah, in sicer pravico reproduciranja, pravico javnega izvajanja, pravico javnega prenašanja, pravico javnega predvajanja s fonogrami in videogrami, pravico javnega prikazovanja, pravico radiodifuznega oddajanja, pravico radiodifuzne retransmisije, pravico sekundarnega radiodifuznega oddajanja, pravico dajanja na voljo javnosti, pravico predelave, pravico avdiovizualne priredbe, pravico distribuiranja ter pravico dajanja v najem in vse druge pravice avtorja v skladu z ZASP.
Avtorjev prenos pravic po pogodbi je neizključen, velja za neomejeno število izdaj, za ves čas trajanja materialnih avtorskih pravic ter je prostorsko neomejen.
Avtor sme avtorsko delo tudi sam izkoriščati ali avtorske pravice prenašati na tretje osebe, vendar oboje šele po preteku 3 mesecev od prve objave dela v reviji Zdravniški vestnik.
Avtor Zdravniškemu vestniku izrecno dovoli, da lahko pravice, pridobljene v skladu s pogodbo prenaša naprej na tretje osebe brez omejitev.
Avtor se strinja, da Zdravniški vestnik prispevek objavi pod pogoji licence Creative Commons BY-NC 4.0 (navedba avtorstva-nekomercialno) ali primerljive licence.
